This blog is about one family’s journey with Ectodermal Dysplasia.
When we were researching “Ectodermal Dysplasia”, we found the ‘scary stuff’ first.
We didn’t find information or stories on families in the same/similar situation, and fretted – unnecessarily – about the ‘small stuff’.
So Keeping It Cool is not only here for our family and friends to follow Hamish’s progress, but for others living ‘Life with Ectodermal Dysplasia’.
For more information regarding this rare genetic condition, see Links.